SUMMER FUN

Well Terry got his first "summer " cold and he has been feeling bad for the last week or so. He is feeling better now. Today we went outside for a while and he really loved it. The lil guy loves to go outside... but then who doesn't?? Terry has been on an antibiotic and a steroid for the last week and he is doing much better, and sleeping much better too, which means I am sleeping better too. Whoo hoo! He is progressing with his standing. He is able to sit up now if you help him by holding his legs for him, it is really cute to watch him accomplish it! He smiles from ear to ear when he does it....Some of the things we are going to do this summer include, going to Washington DC to the zoo, going to busch gardens, water country, and spending a week in Virginia Beach. Terry is a water baby so I know he will enjoy spending a week at the beach. We are also going to go to Blue bird gap farm to see the animals and feed the deer and duck and horses. Terry has therapy many times a week so he is a very busy little guy. I think he likes it that way! We are always on the go! It has been that way since the day he was born.

just a little about me and what I like to do!

So as you can see this picture was taken a few weeks ago... but I thought I would update on some of the things that Terry loves to do, and as you can see he loves to fingerpaint...he is really good at it too. He also loves to play on the floor with his toys and...he has mastered the art of moving around. You know Terry can not walk yet, but he sure can scoot around on the floor with the best of them! He gets from one spot to the other in no time flat! It is really cute to watch him scoot all over. He continues to do well with his standing exercises and he is beginning to strengthen his booty and thighs. There is nothing he wont do or at least try his best to do. This is one tough little guy who had the determination on a lion. I don't believe there is any thing that will hold him back once he gets going. As you can see he is a really happy boy, even when he is sick.. which he is right now. I took him to the doctors today and he has a massive upper respiratory infection, sinus infection, bad cough.. but the put him on meds and he is feeling better, never mind mommy's loving care right! He has been tired the last two days but he seems to be sleeping much better tonight. He took a long nap today and that did him a world of good. There is nothing better than rest when you are sick! I have learned a lot from my son, and one thing is... never let anything keep you down.. when a hurdle is put in front of you , you have to jump over it and keep going. That is what TERRY does all the time, he just keeps jumping and gettin' it! Some times it is really hard for me to watch Terry strugle and sometimes it breaks me down but I have to remember that he is a tough guy and he will be fine, even if he has to struggle right now, in the long run it will all be worth it and he will be fine, but sometimes i just cry because i wonder "why" why my son? what did he do? what did we do? it really tests your faith.....

TERRY'S AFO's " MOONBOOTS"

Well as you can see Terry is doing GREAT in his "moonboots" every since he has had them he has been standing... with out help and he is getting stronger every day. He has to work on muscle tone is his booty and thighs. We work with him several times a day and we believe he will be trying to walk here real soon! We have faith in our little one and we know he will do it. He just needs time and we have the time. He still can not crawl but we will work on that. It is kinda hard to crawl when you have limited use of the left arm, but there again he is getting better with that to. Terry is a true "MIRACLE" baby and he has done nothing but surprise us from the beginning and i know he will continue to surprise us! He is doing more and more, the boy never stops. he has figured out how to get around on the floor, nothing stops the little guy. Terry is teaching us a lot at the same time. We love to just watch him and see what he is going to do next. He amazes me every day. He brings love and happiness to everyone that he is around... even strangers smile when they see terry. I can't thank the doctors enough for the care the have given to our little guy! And all of his doctors expect him to go far.. well all except one. But i wont say who that is. He knows who he is! I just choose not to listen to him when he says things like "terry shouldn't be doing this or that" i mean how does he really know???? That's right he DON'T. All in all we are pleased with Terry's progress and we will keep you up dated on his progress. Thanks for all the prayers!

adapting to life with a special needs little guy

OK where to start now... this is a picture of terry and his surgeon after his major surgery in December 2007, so now Terry is getting PT,OT,and Speech therapy. He is doing quit well in all of these. he will be 2 in about a month and a half. He still can not walk,or crawl, but he just got his AFO's and he now is learning to stand. He is trying his hardest... and he is doing it. we have no doubt that he will master the crawling and walking thing. it is going to take some time but we have all the time to give him. He is so happy and lovable and no matter what is thrown his way it don't break his spirit. It is alot of work with terry but i would not give it up for the world, I am constantly doing something with him, weather it be PT,OT,or ST. I am pushing him to do what i know he can do. I know sometimes he gets mad because he don't want to do it, but he still does it. It can be overwhelming at times, but when i get to that point i just look at him and remember why i am doing this..... for him! There are so many doctor appointments, scans, EEG's,EKG's, MRI's. But we get through it. Sometimes i think it is harder on me than it is on him. To know what he is going through, and at times i feel helpless. I cry alot...in the shadows where no one can see me, i do not want people to think i am weak or that i cant handle it.. that is so not the case. i can handle it... it just gets hard sometimes. I feel like i am doing this all by my self, but i know i am not, terry's care involves everyone in our family. But most of it is on my shoulders, but then that is all part of being a mom! I hate it when people label my son, nothing angers me more! If you do not know my son and his situation who are you to judge! I don't judge people, and yet people are always judging him and my family... What the Hell! How can someone talk about a child, let alone anyone? unless you walk in my shoes, don't judge me or anyone in my family! Terry is a beautiful, happy little guy who loves his family! andwe love him too