Saturday, October 24, 2009

MAKING WONDERFUL PROGRESS!!! GO TERRY!!!


Terry had riding therapy on Friday, and he did great! He really did not need much support! I am so proud of him for how he is doing! He has not been doing this long, but he is really showing great improvement already! It is AMAZING TO SEE HOW THIS IS REALLY HELPING HIM! Terry is advancing do fast I can hardly keep up with everything new he is doing. This is one determined little boy and I believe he is not going to let anything stand in his way! To watch him do things with suck persistence gives the the strength to do things too. Terry is such an inspiration in a lot of ways. I only hope that he keeps it all up! I know he has to get tired of doing therapy all the time, but I know that it is good for him...and I think he know too. Some days he is just not in to it, but we all have our off days! why shouldn't he be allowed to have an off day too! For the most part he is ready to work when his therapist comes in to the home! Unless he is really tired or just didn't sleep well the night before! Well Terry mommy is proud of you and i know you can do it baby!!!!!!!!!!! The big dog you see... well he is the resident dog out at the ranch and he just loves terry, this dog is so big that Terry could ride him like a horse!!!!! (NO KIDDING)

Wednesday, October 21, 2009

VIRGINIA BEACH 2009


This picture was taken at the beach, it was so windy but Terry did not care. All he wanted to do was play in the sand... he had such a good time. He got so upset when we had to leave! Terry loves to play out side! He is so fun to just watch. We spent the week at the beach in September and the entire time we were there he was so good! but then he always is! He is always such a happy little one! Sometimes i wonder how can he be so happy given all that he has gone through? I know why now, because he is so very loved by everyone! as long as he is happy i am happy too. terry has an ear infection right now and is not feeling the best but he is still smiling for the most part, unless the pain get to be too much for him, which it has here in the past few days. I hope the meds will work for him soon. he has been on an antibiotic since last week. But I am thinking that they are going to have to give me a drop for his ears. He has really small ear canals and this makes his ear infections harder to treat, sometimes his little ears canals will swell almost completely closed... that's when i know the infection is a bad one! this one has not been like that. I am so careful in paying attention to his actions and keeping an eye out for something not being right, and so far i have been right on target to what was going on with him. Sometimes I wish I was not a nurse, I see more that the average person does, and that can be a bad thing. I know it terrified me when Terry was born and in the NICU, I would catch things before his nurses did, and sometimes that really got to me. Sometimes it is hard to separate your self from your profession and just be a mommy..... But then maybe this is why I chose to be a nurse, everyone says things happen for a reason. Terry doctors always tell me that Terry couldn't have chose a better mom. that makes me feel good! I do the best I can, and sometimes i doubt my judgement, but i am usually right so i need to learn to go with my gut feeling and not doubt myself! I don't think there is anyone else that knows terry like i do!! I have taken terry back to the NICU to see the nurses and they can not believe how big he is and how far he has come since he was there... not that he was ever really small. he started out rather large at over 8 pounds!

Monday, October 19, 2009

MY BIG BOY!


So Terry is doing great! He is making so many milestones... not really your typical ones but they are milestones nonetheless! I am so proud of the things he is doing, and he does new things everyday! I have seen major changes since he has started the riding therapy! I am just blown away at the results we are seeing already! Sometimes it can get overwhelming, but I just have to tell myself that there is no stopping this lil guy and there is so much more he is gonna do even if it takes him longer to get to where he is supposed to be... well that is OK because we have plenty of time! He had adapted his own way of getting around on the floor... we call it "the side winding maneuver" and he is a pro at it! One minute he is by the TV and the next he is by the window, and he is fast at it too! I have to admit he has had a hard time getting to where he is but he keeps on going and he is always happy! I know he has to get tired of all the therapies but he just keeps going! Sometimes I wish I had his will because his is the strongest of anyone I know. He has taught me a lot in his short time here. We all have a different view on a lot of things! It can get aggravating when you hear people talking when you walk by and you are carrying terry, and people say.. that boy should be walking...yes he should be but he's not, but he will be soon! (in his own time) sometimes I feel like just telling them to mind their own business! I just smile and keep on getting it! I really do not care what people think, all I care about is making sure our son has what he needs! I would move mountains to get him what he needs... sometimes I think I have moved mountains for him just to get the simple things he needs. But you will do what ever it takes for your kids no matter what! When I get down or discouraged I just look at him and think of all he has been through, and I feel better! Terry has his gait trainer now and is working on getting used to it, but before he can learn to walk in it he has to build the strength in his legs and hip area... which is where the horse riding comes in!

Sunday, October 4, 2009

FALL IS HERE!

Well here we are! The first part of October, and Terry is doing great! He is making leaps and bounds. He does something new and exciting every day! I am telling you he is a truly amazing child! He just got his gait trainer about a week ago, he is really not sure what to think of it yet, but he does get in it and at least try. I know this is not an overnight thing and it is going to take him time to figure out what it is and what it is for, but he WILL GET IT! Terry is a determined little guy and believe me his is going to prove a lot of people wrong.... yes there are some people out there that say he wont be able to do this, he wont be able to do that... but are we going to listen to them?? NO WE ARE NOT! NO ONE CAN WILL LABEL HIM! Sad thing is that there are so many people out there that like to open their mouth and they have no idea what they are opening their mouth about. This really gets to me! Yes Terry has a ways to go but he is on his way! He goes through a lot too and I really do not think people really know what he does in a week, so let me give you a glimpse of one of our weeks: Monday: Occupational Therapy at 10:30 in the morning, then there are things i have to d0 with him throughout the day that is also therapy related, Tuesday: Speech Therapy at 2:00 in the afternoon, then we have other therapy related things we have to do during the day, Wednesday: Psychical Therapy at 10:00 in the morning, Riding therapy in the afternoon, and other therapy things during the day,Thursday: he has no scheduled therapy, but we still have to do many therapy things to meet his weekly goals, Friday: no scheduled therapies but we still have things to do, and very often we have doctors appointments we have to squeeze in there too. and not to mention getting him in his gait trainer, and his stander so he can build muscle tone in his legs to be able to walk. So you see there is a lot involved in Terry's life but he does it, and does it all with a BIG SMILE! :O) ! Maybe if people could see what it is Terry has to go through every day maybe they wouldn't complain about silly little things! So many people take the simplest things for granted...like walking, or feeding themselves... If Terry has taught me one thing it is not to take ANYTHING FOR GRANTED! I hope to have new pictures of Terry to post real soon, but as you can see we are very busy here and it is hard to find the time to just sit down and update things. I will do it soon!!!!!

Saturday, September 12, 2009

RIDING THERAPY...DREAMCATCHERS RANCH



Well I know it has been a while since I last posted.....Things are going well for Terry . He started his riding therapy last week (9/9/09) and he really loves the horses and all the people out at DREAMCATCHERS RANCH he just loves the horses, and they love him too. I really think this is going to help him a lot!

Saturday, July 25, 2009

MY BIRTHDAY PARTY!!!!!!







Well Terry's birthday party was a hit! He had a ball! He was so excited by everyone being here and all the stuff he got! Should have seen his little face light up! It was wonderful just to watch him. He had a lot of fun opening his presents, but I think he liked the cards more. The cake...well that was trip to watch, as soon as we put the cars cake in front of him he went for it! It was so cute. He was so tired by the time it was all over that he was starting to get grumpy...no wonder right. We gave him his bath and tried to get him settled for bed, but he was just so excited that it took him a while to fall asleep but once he did he was out cold. Nothing could wake him up right now! I went in to check on him and he didn't even move and normally he will move when you open the door, but not tonight. I can not believe he is already 2 years old and he has over come some really big things in his first 2 years of life, when you sit back and look at it you wonder how he did it and managed to still smile, but he does! He smiles all the time! Terry is suck an inspiration to me and a lot of people! Some people can not believe he is as happy as he is given all he has been through! People should learn from children who go through a lot just to lice. You always hear complaining about how hard life is... well have you ever thought how hard life would be if you couldn't walk on you own? or how hard it would be for you if you couldn't use your left are? No you probably have not... well my son can't walk yet or use his left arm very well but you will not hear him complain, he just makes it work and keeps on getting it! I thing you should be thankful for what you have and things you can do and every once in a while think about a child that can not walk or can not use their arm(s). Try to imagine life without walking...and just be thankful you can because in a flash your ability to walk could be gone.. Terry is an amazing child who has beat a lot of odds! I am thankful for what he can do and what he has and as long as he is happy we are happy, and I really do not worry about things he can not do right now because I know he will one day! It might take some time,but we have all the time he needs!

Thursday, July 23, 2009

I AM TURNING 2 TOMORROW...WAY TO GROW

Well this is it! My little guy is turning 2 tomorrow. He is not a baby anymore! Well he will always be my baby! He has been through so much and he is doing so well! He is doing great with his AFO's and he has been getting good at standing up. We are working on strengthening his legs so when he gets his gait trainer next month he will be ready to go! I know there will be no stopping him once he gets going. Oh what I wouldn't do to see him walk across the floor! He is getting around pretty good on his own when he is on the floor. We call him our lil "side winder" because he looks like a sidewinder snake when he scoots across the floor it is really cute to watch. It really goes back to all the doctors tell you when they say "your child will develop his own way of moving around and communicating" and boy has he! Terry is suck a special little guy and he brings happiness to everyone he meets and he loves whole heartedly. He always has a smile on his face and a hug to give to anyone who wants one! We are so happy he is turning 2 tomorrow, but I can't help but wonder where did all the time go? Has it really been 2 years... yes it has! And I know where all the time went it went to many many doctor appointments, 3 hospitalizations, 3 surgeries and many therapy appointments, but terry is doing well and has gained a lot from all we have to do! Through it all he still manages to smile! He really is an AWESOME KID! soon I will be posting pictures of his adventure to "DREAMCATCHERS RANCH" in Toano Virginia. He really loved being around all the horses and he already has a favorite...tatertot! it was really neat to watch him interact with the horses and see how gentle the horses were with him and how gentle he was with the horses! So COMING SOON: PICTURES OF TERRY AT THE RANCH. So please check back in a few days to See them.

Tuesday, June 30, 2009

SUMMER FUN


Well Terry got his first "summer " cold and he has been feeling bad for the last week or so. He is feeling better now. Today we went outside for a while and he really loved it. The lil guy loves to go outside... but then who doesn't?? Terry has been on an antibiotic and a steroid for the last week and he is doing much better, and sleeping much better too, which means I am sleeping better too. Whoo hoo! He is progressing with his standing. He is able to sit up now if you help him by holding his legs for him, it is really cute to watch him accomplish it! He smiles from ear to ear when he does it....Some of the things we are going to do this summer include, going to Washington DC to the zoo, going to busch gardens, water country, and spending a week in Virginia Beach. Terry is a water baby so I know he will enjoy spending a week at the beach. We are also going to go to Blue bird gap farm to see the animals and feed the deer and duck and horses. Terry has therapy many times a week so he is a very busy little guy. I think he likes it that way! We are always on the go! It has been that way since the day he was born.

Monday, June 22, 2009

just a little about me and what I like to do!



So as you can see this picture was taken a few weeks ago... but I thought I would update on some of the things that Terry loves to do, and as you can see he loves to fingerpaint...he is really good at it too. He also loves to play on the floor with his toys and...he has mastered the art of moving around. You know Terry can not walk yet, but he sure can scoot around on the floor with the best of them! He gets from one spot to the other in no time flat! It is really cute to watch him scoot all over. He continues to do well with his standing exercises and he is beginning to strengthen his booty and thighs. There is nothing he wont do or at least try his best to do. This is one tough little guy who had the determination on a lion. I don't believe there is any thing that will hold him back once he gets going. As you can see he is a really happy boy, even when he is sick.. which he is right now. I took him to the doctors today and he has a massive upper respiratory infection, sinus infection, bad cough.. but the put him on meds and he is feeling better, never mind mommy's loving care right! He has been tired the last two days but he seems to be sleeping much better tonight. He took a long nap today and that did him a world of good. There is nothing better than rest when you are sick! I have learned a lot from my son, and one thing is... never let anything keep you down.. when a hurdle is put in front of you , you have to jump over it and keep going. That is what TERRY does all the time, he just keeps jumping and gettin' it! Some times it is really hard for me to watch Terry strugle and sometimes it breaks me down but I have to remember that he is a tough guy and he will be fine, even if he has to struggle right now, in the long run it will all be worth it and he will be fine, but sometimes i just cry because i wonder "why" why my son? what did he do? what did we do? it really tests your faith.....

Wednesday, June 17, 2009

TERRY'S AFO's " MOONBOOTS"

Well as you can see Terry is doing GREAT in his "moonboots" every since he has had them he has been standing... with out help and he is getting stronger every day. He has to work on muscle tone is his booty and thighs. We work with him several times a day and we believe he will be trying to walk here real soon! We have faith in our little one and we know he will do it. He just needs time and we have the time. He still can not crawl but we will work on that. It is kinda hard to crawl when you have limited use of the left arm, but there again he is getting better with that to. Terry is a true "MIRACLE" baby and he has done nothing but surprise us from the beginning and i know he will continue to surprise us! He is doing more and more, the boy never stops. he has figured out how to get around on the floor, nothing stops the little guy. Terry is teaching us a lot at the same time. We love to just watch him and see what he is going to do next. He amazes me every day. He brings love and happiness to everyone that he is around... even strangers smile when they see terry. I can't thank the doctors enough for the care the have given to our little guy! And all of his doctors expect him to go far.. well all except one. But i wont say who that is. He knows who he is! I just choose not to listen to him when he says things like "terry shouldn't be doing this or that" i mean how does he really know???? That's right he DON'T. All in all we are pleased with Terry's progress and we will keep you up dated on his progress. Thanks for all the prayers!

Friday, June 12, 2009

adapting to life with a special needs little guy


OK where to start now... this is a picture of terry and his surgeon after his major surgery in December 2007, so now Terry is getting PT,OT,and Speech therapy. He is doing quit well in all of these. he will be 2 in about a month and a half. He still can not walk,or crawl, but he just got his AFO's and he now is learning to stand. He is trying his hardest... and he is doing it. we have no doubt that he will master the crawling and walking thing. it is going to take some time but we have all the time to give him. He is so happy and lovable and no matter what is thrown his way it don't break his spirit. It is alot of work with terry but i would not give it up for the world, I am constantly doing something with him, weather it be PT,OT,or ST. I am pushing him to do what i know he can do. I know sometimes he gets mad because he don't want to do it, but he still does it. It can be overwhelming at times, but when i get to that point i just look at him and remember why i am doing this..... for him! There are so many doctor appointments, scans, EEG's,EKG's, MRI's. But we get through it. Sometimes i think it is harder on me than it is on him. To know what he is going through, and at times i feel helpless. I cry alot...in the shadows where no one can see me, i do not want people to think i am weak or that i cant handle it.. that is so not the case. i can handle it... it just gets hard sometimes. I feel like i am doing this all by my self, but i know i am not, terry's care involves everyone in our family. But most of it is on my shoulders, but then that is all part of being a mom! I hate it when people label my son, nothing angers me more! If you do not know my son and his situation who are you to judge! I don't judge people, and yet people are always judging him and my family... What the Hell! How can someone talk about a child, let alone anyone? unless you walk in my shoes, don't judge me or anyone in my family! Terry is a beautiful, happy little guy who loves his family! andwe love him too

Thursday, May 7, 2009

SETTLING IN WITH THE "NEW BOOTY"

Well here we are getting used to life with a new booty and having to be so careful with him and all his stitches. we all adapted well, and Terry did fine once home, eating well growing like a weed. Happy as ever. having stitches all across his tummy and in his bottom didn't seen to bother him. mid January he had to go back under anesthesia to have his stitches removed and have his bottom dilated. this was an out patient surgery... thank god for that. after the surgery we had to dilate him every day once a day. then it went to every other day. Then we got to once every 4 days, on March 28, 2008 terry went back in to the hospital for yet another surgery.. but this one would be an easy one.... CLOSING OF HIS COLOSTOMY!!!!!!! WHOOO HOOO! So he had surgery on his daddy's birthday and he did well. post op was a little rough, but he did fine. We knew he would. He spent about 3 days in the hospital. They wanted him to have his first bowel movement while in the hospital in case something went wrong.. but nothing did. He pooped like a champ. It didn't take long for him to adapt to pooping. He is such a trooper! we had to play with his diet and keep him from getting impacted or constipated.. boy was that a chore, and it took a lot of adjusting but we got it right and now terry is going great. He still has alot of obstacles in front of him, but it don't keep him down. he is a wonderful guy!

Wednesday, April 8, 2009

Well here we are about 5 hours post op and Terry is resting. But that was short lived. He had only been in his room for about an hour when I noticed his skin was turning RED....What the heck? so I got his nurse, she told me they gave him a med to dry his secretions during surgery and that it would go away soon. So we settled in for the night. It was pretty quiet as they kept him on Morphine to rest. The next night however was a living hell mainly for Terry but for us too. By this time his tummy had doubled in size and he was developing spider veins, he was very uncomfortable...duh right! Well by morning I had enough of watching my son suffering and the nurses doing nothing about it so I went on a rampage!!!! wouldn't you? I DEMANDED to see the resident or his doctor, I really did not care who but I wanted to see one of them and ASAP! Well the resident came in and looked at Terry, NO, he didn't touch Terry and feel how tight his tummy was, after about 5 minutes he told me he would be fine and that this was normal...NORMAL my foot you see what this jerk did not know was that I am a licensed nurse and I knew better so... I let him walk out the room as my son had visitors and I was not going to make a stink infront of them. So out the door we went and I proceeded to jump down his throat with both my feet. I told him you Will place a nasogastric tube to drain the fluid (that I know he has in his tummy) and that if he wouldn't I was going to do it my self and you better beleive I would have too. So he agreed AFTER...AFTER he called and talked to TERRYS doctor (which told him..If his mom says he needs something you need to listen to her as she knows what she is talking about and she knows her medical stuff!) So they placed the tube and before it was even hooked up to suction 80cc's of fluid was released... can you inagine how much better he felt! It's like pressure building up in a soda can and you finally open it and release the pressure. As a result of the fluid build up he was not allowed to have anything to eat for 5 days. My boy was beyond hunger when they finally said he could eat! I thought he was going to suck the bottle inside out when he was able to eat! So Terry was released from the hospital on December 20,2007... 5 days before christmas. What a wonderful christmas present. But it was difficult for him at home, because of the stitches in his tummy he couldn't lay on his belly, because of the stitches in his hinney he could not sit on his butt for more that 20 minutes at a time, because if he did he could over stretch his new "booty" so we didn't go any where and if we did we didn't stay out for long because it wouldn't be fair to him.

Wednesday, March 25, 2009

Ok....well we all settled in to our new routine. Terry was doing fine, growing and happy as could be. Time just ran away. Things just passed us by. We were so into making sure Terry had everything that he needed that before we knew it Terry was 2 months old. He had many many doctors appointments, I swear my second address was CHKD 600 childrens lane norfolk va. We spent so much time there and after a while it got to be second nature. We knew just about every one over there. We were making about 2 or 3 trips a week for the first 4 months.... Then it happened, his surgeon decided it was time for Terry to have the major surgery.... he was to have the PSARP procedure done. so after talking about it we decided to go ahead with it.. I was scared.....to say the least. I mean he was only 4 months old and he had been through so much already. Was he really ready for this? He was admitted to the hospital on December 14,2007, had to do the bowel prep..which was no fun at all! but he smiles through it all. He had surgery on the 15th, they told us it would only take about 4 hours, so we go with our son to the OR, the nurse comes to get him...I cried and didn't want to let go of him. I was so scared that something Would go wrong! typical fear! we sat in the waiting room 2 hours go by they call say he is doing fine, 4 hours go by... another call all was fine, then a huge time gap before the next call... there was a problem, Terrys intestine were rotated, therefore his surgery would take LONGER... are you kidding me! i am loosing my mind now! His surgery lasted 7hours 56 minutes. He had done fine,but the doctor said he would be very sore, he was cut from just about hip to hip and had sutures in his bottom where they "created" his new butt hole.

Monday, March 23, 2009

So here we are on our way home from CHKD with our son...finally he was coming home. Fear set in, could I do this? would he be alright? my husband had to learn colostomy care, bag changing, things to look for...ect. I feel like he was over whelmed at times but he was a trooper and didn't show it. So we got home around 9:00pm, had to pick the girls up from grandma's house, by the time we finally did get home Terry's colostomy bag had come loose. His skin looked so bad from the adhesive...duh! he was a newborn and his skin was so delicate. this was the first of our fights with colostomy bags, it went on for about a month... I couldn't take hurting him any more having to pull wafers off and glue new ones on (we were having to do this at least once a day and sometimes twice a day) I said this is not fair to him his skin was breaking down and this could be a real problem...so being the nurse I am I thought and thought until I came up with a system that would work for Terry.... and I did. I took 4 different diaper rash creams, ILEX,Vaseline, neosporin and triple paste and made my own concoction and applied it to the entire area including the ostomy it's self then covered it with a 4x4 gauze and Terrys skin healed beautifully! so from then on we never used colostomy bags again. When I took him to his surgeon for his check up... Dr. Mahaffey said he had never seen such beautiful skin on a baby and asked me what I was using. I explained it to him and he said it was a great idea as long as the ostomy stayed moist and did not change color. yes we had to buy bigger diapers and had to invest a small fortune in gauze and other supplies but he was worth all of it. and laundry...oh my god! but that was just part of it...
No one could prepair me for what I was about to see. My son was hooked up to all kinds of machines, tubes in his belly, in his arms, he had an oxyhood over his head and he was on 100% oxygen. He was so tiny...and yet the biggest baby in the neonatal intensive care unit. He was 8pounds and 4 ounces and you really wouldn't know there was something wrong by looking at him. We waited forthe doctors to come see him and talk to us! I knew Terry was born with out a butt hole otherwise known as INPERFORATE ANUS what? This was the first time I had heard of such a thing. But the doctor said it was very common in little boys, he also had RESPIRATORY DISTRESS, he had PPHT which resolved by day 7! He had a heart anomaly which we did know about before he was born but we didn't know the extent of it. One side of his heart is larger than the other. So What were they going to do about his hinney? Well on July 26 2007 Terry had his first surgery, colostomy placement. There were no complications with this surgery... thank god. And I guess it is a good thing that i am a pediatric nurse because he was going to need alot of care, and i already had knowledge of colostomy and colostomy care it really helped. So we were at that hospital every day and every day he got stronger and stronger but i did not get to hold him until he was 7 days old. My poor baby was NPO for the first 6 days, he was getting TPN and lipids... meat and potatoes in a bag...lol. When he was finally able to take something by mouth he was tube fed...breast milk and boy did he like it. I pumped all the time for him and froze it at home to bring to him. I was finally able to breast feed him when he was 8 days old...He took to it like a champ and wouldn't let go! (well can you blame him!) we spent as much time over there. our girls stayed with their grandma Becky in Hampton while terry was in the hospital..was the best thing for them. they got to see him every day. we felt that it was important for them to see him as often as we did... he was their brother! well here we are day 10 august 1st we are getting ready to take terry home. those were the longest 10 days I have ever seen. But we were ready to take him home..........welcome home Terry Mikael Bergeron!!
Well here we are in labor in delivery, me my husband, my sister,my best friend... everything going well cervadil in place and now we are playing the waiting game. Hours run on top of each other, everyone leaves except for David, and my best friend Stephanie is in her van resting. so the night wears on. Around 5:00 am i get up to go to the bathroom. felt fine, no real contractions yet. Well when I walked back to the bed, I felt something wet...What could it be I wondered. well it was my water breaking..so David went and got the nurse and Iwaited. once she confirmed what I already knew we made our call because we really wanted our two girls to be there for the birth of their brother, and we were told that the third baby could come fast. We didn't want to chance them missing the birth. We were excited and I admit I was a little scared. Time from this point on went really fast. Before I knew it it was time to deliver our son. I only pushed for 2 minutes and little TERRY MIKAEL BERGERON was born...but there was something wrong. I didn't hear him cry. I got real worried. minutes went on and still no crying, by this time I knew there was something wrong with our son. He was not breathing on his own! There was total chaos!!!!!! There were so many people in and out of the room I couldn't keep up with then all. By this point I was in total shock. NO! how could this be? Terry was fine and moving all night long... what went wrong? They let me hold him.. very briefly,let david hold him and the girls, Then the real night mare.. My new born son coded! He was now on oxygen and being wisked away to the special care nursery for test and x-rays and labs ect.. David and I were in disbeleif! As my husband stood beside me to try to consloe me the IDIOT NEONATOLIGIST asked us WHAT TYPE OF INSURANCE DO YOU HAVE? What!!! What the hell does this have to do with anything? Later we found out that it ment the difference in terry being sent to another hospital or staying at riverside. Thank god Dr. Hill ordered for him to be sent to Children's Hospital Of the Kings Daughter in Norfolk. So within an hour or 2 of him being born he was on his way. I got to see him...but not hold him before he left. I told David to go with him! I didn't want our son to be alone and at this point we didn't even know if he was going to make it! So there I was all alone in the hospital and a wreck to boot. My son was gone my arms were EMPTY! this was supposed to be a happy day! But it was so bitter sweet. Emotions all over the place from happy to scared to shocked to fear to lonley! I sat in my room wondering what was going on with terry, was he ok? did he make it? why has no one called me! Then my girls are brought up to see me and we go out side I could not stand being on the mother baby floor hearing all those babies cry knowing they were healthy and my was not here and didn't know what was going on with him! the fear of the unknown can kill you! I didn't get a call from David until 10 hours later at 8pm he told me they were still assessing terry and he had not been able to see him yet but that he was ok. Stephanie went to get David around midnight so he could be with me. So the next morning I was supposed to be discharged, the nurse practitioner came in.. the first thing out of her mouth is WHY DON'T YOU HAVE YOUR SON IN HERE WITH YOU? I said are you kidding...did you not read my chart? if you did you would know he is in Norfolk! She then said we are keeping you one more day...I said like hell I am going to be with my son! and at 830 in the morning we rolled out and headed straight to CHKD! I had to see my son.

Sunday, March 22, 2009

Where to start...

I really don't know where to start. So I guess it would be best to start at the beginning... That would be July 23 2007, on this date I went in to see my OB doctor for my weekly prenatal appointment, Yes this was the beginning of what I thought was going to be a "normal" delivery. My doctor decided to admit me and induce labor using "cervidil" ok I thought. He told me i had to be at the hospital by 5:30 pm that night...It was 4:15 when I left his office. He assured me that everything was fine, but that Terry was way down in the birth canal and he wanted to go ahead and deliver him. So I left, called my husband so he could leave work and meet me at the house, I called Grandma Becky to come get our other 2 children and off we went.