Monday, March 23, 2009

No one could prepair me for what I was about to see. My son was hooked up to all kinds of machines, tubes in his belly, in his arms, he had an oxyhood over his head and he was on 100% oxygen. He was so tiny...and yet the biggest baby in the neonatal intensive care unit. He was 8pounds and 4 ounces and you really wouldn't know there was something wrong by looking at him. We waited forthe doctors to come see him and talk to us! I knew Terry was born with out a butt hole otherwise known as INPERFORATE ANUS what? This was the first time I had heard of such a thing. But the doctor said it was very common in little boys, he also had RESPIRATORY DISTRESS, he had PPHT which resolved by day 7! He had a heart anomaly which we did know about before he was born but we didn't know the extent of it. One side of his heart is larger than the other. So What were they going to do about his hinney? Well on July 26 2007 Terry had his first surgery, colostomy placement. There were no complications with this surgery... thank god. And I guess it is a good thing that i am a pediatric nurse because he was going to need alot of care, and i already had knowledge of colostomy and colostomy care it really helped. So we were at that hospital every day and every day he got stronger and stronger but i did not get to hold him until he was 7 days old. My poor baby was NPO for the first 6 days, he was getting TPN and lipids... meat and potatoes in a bag...lol. When he was finally able to take something by mouth he was tube fed...breast milk and boy did he like it. I pumped all the time for him and froze it at home to bring to him. I was finally able to breast feed him when he was 8 days old...He took to it like a champ and wouldn't let go! (well can you blame him!) we spent as much time over there. our girls stayed with their grandma Becky in Hampton while terry was in the hospital..was the best thing for them. they got to see him every day. we felt that it was important for them to see him as often as we did... he was their brother! well here we are day 10 august 1st we are getting ready to take terry home. those were the longest 10 days I have ever seen. But we were ready to take him home..........welcome home Terry Mikael Bergeron!!

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