Monday, March 23, 2009

So here we are on our way home from CHKD with our son...finally he was coming home. Fear set in, could I do this? would he be alright? my husband had to learn colostomy care, bag changing, things to look for...ect. I feel like he was over whelmed at times but he was a trooper and didn't show it. So we got home around 9:00pm, had to pick the girls up from grandma's house, by the time we finally did get home Terry's colostomy bag had come loose. His skin looked so bad from the adhesive...duh! he was a newborn and his skin was so delicate. this was the first of our fights with colostomy bags, it went on for about a month... I couldn't take hurting him any more having to pull wafers off and glue new ones on (we were having to do this at least once a day and sometimes twice a day) I said this is not fair to him his skin was breaking down and this could be a real problem...so being the nurse I am I thought and thought until I came up with a system that would work for Terry.... and I did. I took 4 different diaper rash creams, ILEX,Vaseline, neosporin and triple paste and made my own concoction and applied it to the entire area including the ostomy it's self then covered it with a 4x4 gauze and Terrys skin healed beautifully! so from then on we never used colostomy bags again. When I took him to his surgeon for his check up... Dr. Mahaffey said he had never seen such beautiful skin on a baby and asked me what I was using. I explained it to him and he said it was a great idea as long as the ostomy stayed moist and did not change color. yes we had to buy bigger diapers and had to invest a small fortune in gauze and other supplies but he was worth all of it. and laundry...oh my god! but that was just part of it...

No comments:

Post a Comment