today was pretty uneventful, Terry has been playing all day, goodness where does he get the energy? I wish I had it right now! We are moving in 7 days and thereis still so much to do here! I need a time stretcher!!!! Terry did well in his therapy this morning, however he was not really in to the walking thing this morning, but I got him to do it later. He is really getting strong, and that is a good..no great thing! He will be walking before we know it! His doctors all say by the time he is four, but judging by what I see I say he will be walking before he is "3"!!! Wouldn't that be a great birthday present for both of us, because our birthdays are 9 days apart, mine is 9 days before his! Well with a little prayer and a lot of hard work on his part and mine we should be at the walking thing by July! One of the things that AMAZES me is his willingness to do things, even when he is tired he still does what he has too, most adults would just give up, but not my 'lil man, he just keeps on getting it! Nothing stops him, not even being sick! There are some days when I feel bad because I will be having a bad day, and I know there are things that I have to do with him but I am just not able too. Those days a few and far between, but I still feel bad when I can not do what needs to be done! He is gos gift to us, and we love him for who he is, even though people don't understand what we are all dealing with, most of all TERRY! I know people talk about him because he can not walk yet, and he don't talk too much but it don't bother us because TERRY IS PERFECT IN EVERY WAY TO US AND THAT IS ALL THAT MATTERS! Every one that knows him loves him and he loves anyone who just plays with him or smiles at him or just holds him. There are not too many people that are lucky enough to know Terry's love but those that do cherish it!!!!

ANOTHER DAY...MORE MILESTONES!

MY LITTLE MAN WALKED TODAY.... I am so proud of him! he did it with out his braces! He took about 12 steps! boy I know it was hard for him to do, but the whole time he was smiling from ear to ear! Hopefully before too long he will be doing this on his own without help from mommy or daddy! I am amazed by what he does every day! He works so hard for the things he can do! His sisters help him a lot! They make it seem like a game, and it gets him to do what he needs to and he enjoys what he is doing while he is doing it! Soon we will be in our new house and we are all excited about it, Terry is too I can see it in his eyes when we go to the house to do some work, he knows he has his own room there. Don't know how I will take it because he has been in our room since he came home from the hospital... well we will see! Off to new and better things.. our family that is!

Not a lot going on here...well except for moving, boy will that tire you out!!! Terry is doing well, still has bleeding from his bottom, but he goes to see the surgeon on Thursday, I have a feeling it will result in surgery...but if that is what it takes to get him better then so be it! Not like he has not been through it before! Terry had Occupational Therapy today and he did really well! He is starting to use his left hand more and more! I knew he would! Some days he uses it more than others, I still think that he will cone out of this left handed, wouldn't that be nice! Maybe one of my children will be a south paw like me!!!! He is getting to be suck a BIG BOY!!! his vocabulary is growing more and more every day! He is now taking steps, assisted, but step! He wears his DAFO's everyday, but in spaced out periods because if i were to leave them on all day he would just take them off after an hour or so! He is so smart!!! He is capable of taking steps without them, however it does sometimes hurt his ankles, but he will do it anyway!!!! Tomorrow he has Speech Therapy at 230 in the afternoon, and I know he will do well there too! not much more to say tonight, except :I thank god every day for Terry and I cherish everything he does! I know it is hard for him to do things so when he does them I just hug him and tell him "i knew you could do it baby!" So many people take everything for granted, not me! because even the small things are something big in my eyes!!!!

LITTLE BOY.....

Well Terry is doing so many new things these days! We are so proud of him! He is sitting up on his own more and more, he just loves to stand {even though he needs our help}, he is saying more, one of his favorite things to do is play with his sisters and our pets, in the photo, is Chester, a friend of Amanda's brought him over to see Terry and it took us forever to get Chester away from him! Terry is doing great in his horse back riding lessons he has gone from needing total support to only needing ankle support...in a matter of a few lessons, he is now able to feed "Lark" her treat after the lesson, next he will be working on grooming her. He just loves his time out at the ranch! He was out of session for a few weeks for the holiday break but boy was he glad to get back to it this last Friday! Our little boy is growing so fast, and making those memorable mile stones faster and faster! I always said he was going to prove all the doctors "WRONG" and by god he is! Terry is having eye surgery in just under a month and I am worried about it because there is an increased risk of bleeding, But the doctor said that there is nothing to worry about, ha, easy for him to say, it is not his son going under the knife!!!!! Terry has been through so much I only hope he will do fine with this surgery! He is a STRONG little guy! I can't believe he will be turning 3 in just 6 months and 1 week, gosh where did the time go??? Seems like just yesterday he was in the NICU at Childrens hospital and having the first of many surgeries, now he is almost 3, colostomy free and making great progress! I am amazed at the pace he is doing things now! but I know he still has a lot up his sleeve!

HAPPY NEW YEAR!

So things are off to a good start! Terry is doing some wonderful things! I know it has been a long time since I posted last but we have been busy, busy, busy. Terry is still doing therapy 4 times a week. He is doing so many new things like: standing unassisted, standing with our help, he is used to his gait trainer now. He is trying to talk more now. He is doing something new every day! He is just an AWESOME little boy! he is going to prove all the doctors wrong, which we knew he would! He has a wonderful attitude, he is just as happy as he can be! He was sick over the holidays, but you would have never know! he smiled all the time! There are really no words to describe how Terry makes me feel. There are no word good enough to explain it. I just can say that I am a blessed person, because I am here with Terry and I get to see all of his "firsts" and it is an amazing feeling! We have had a bit of a set back though, Terry has been seeing an eye doctor since he was very young, and this eye doctor told us terry needed eye surgery on his left eye to align it, she said we could wait until he was about 5 or so... well I went for a second opinion because being a nurse I just felt there was something not right, so we went for the appointment, and the first thing this doctor said was "wow he is big for 18 months" I said he is 29 months old, why? that's when he told me terry should have had the surgery done before he was 18 months..."WHAT" I told him what theother doc said and he was quite disturbed by this. He also told me that if terry would have had it done, there is a possibility he would be walking by now! I was so upset by this I left the office in tears, a surgery that only involved his left eye now involves both, and it would have only been one surgery, but now it could take anywhere from 3 to 5 different surgeries on both eyes. But I can't dwell on the fact that the other doc told us wrong, i have to focus on getting him taken care of so he is going to have the first surgery done on Feb. 11, 2010. So please say a prayer for our little guy that everything goes well! I will write again soon!